Impact of urinary incontinence on the sexual lives of women with traumatic spinal cord injury: a qualitative study

Authors

  • Ronize Freitas de Oliveira Bahian School of Medicine and Public Health image/svg+xml , Escola Bahiana de Medicina e Saúde Pública – Salvador (BA), Brazil.
  • Monique Maria Dantas Rêgo Bahian School of Medicine and Public Health image/svg+xml , Escola Bahiana de Medicina e Saúde Pública – Salvador (BA), Brazil.
  • Cátia Suely Palmeira Bahian School of Medicine and Public Health image/svg+xml , Escola Bahiana de Medicina e Saúde Pública – Salvador (BA), Brazil.

DOI:

https://doi.org/10.30886/

Abstract

Objective: To understand the impact of urinary incontinence on the sexual lives of women with traumatic spinal cord injury. Method: A qualitative descriptive study conducted at a public referral hospital specializing in rehabilitation in Northeastern Brazil. Eight sexually active women aged 18 years or older, diagnosed with traumatic spinal cord injury and undergoing rehabilitation, participated in the study. Data were collected between August and September 2025 using a sociodemographic form and semi-structured interviews, which were audio-recorded and transcribed. Data were analyzed manually according to the stages of Bardin’s content analysis. Results: Urinary incontinence negatively affected the participants’ daily and sexual lives, generating feelings of shame, embarrassment, fear of exposure, low self-esteem, and insecurity. It interfered with sexual desire, spontaneity, and autonomy, limiting their ability to fully experience their sexuality. Coping strategies included bladder catheterization and behavioral adaptations. Partner support contributed to rebuilding intimacy and trust, whereas the approach taken by healthcare professionals, although relevant, was limited, revealing gaps in care. Conclusion: Urinary incontinence has a broad and multidimensional impact on women’s sexuality, highlighting the need for comprehensive care that addresses physical, emotional, and social dimensions through empathetic support, attentive listening, and appropriate guidance.

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References

1. Castro e Silva A, Carrijo Barbosa G. Sistema nervoso e a lesão medular: uma revisão da literatura. Rev Saúde Mult. 2023;15(2):41-7. https://doi.org/10.53740/rsm.v15i2.664

2. Ding W, Hu S, Wang P, Kang H, Peng R, Dong Y, et al. Spinal cord injury: the global incidence, prevalence, and disability from the Global Burden of Disease Study 2019. Spine (Phila Pa 1976). 2022;47(21):1532-40. https://doi.org/10.1097/BRS.0000000000004417

3. Botelho RV, Albuquerque LDG, Bastianello Junior R, Arantes Júnior AA. Epidemiology of traumatic spinal injuries in Brazil: systematic review. Arq Bras Neurocir. 2014;33(2):100-6. https://doi.org/10.1055/s-0038-1626255

4. Shimizu N, Saito T, Wada N, Hashimoto M, Shimizu T, Kwon J, et al. Molecular mechanisms of neurogenic lower urinary tract dysfunction after spinal cord injury. Int J Mol Sci. 2023;24(9):7885. https://doi.org/10.3390/ijms24097885

5. Piatt JA, Stanojevic IS, Stanojevic C, Zahl ML, Richmond MA, Herbenick D. Sexual health and women living with spinal cord injury: the unheard voice. Front Rehabil Sci. 2022;3:853647. https://doi.org/10.3389/fresc.2022.853647

6. Ferreira DC, Madeiro AP, Rufino AC. Impacto da lesão medular sobre a sexualidade feminina: um estudo qualitativo. Rev Bras Sex Humana. 2024;35:1178. https://doi.org/10.35919/rbsh.v35.1178

7. Bardin L. Análise de conteúdo. São Paulo: Edições 70; 2011.

8. Osborne JB, Rocchi MA, McBride CB, McKay R, Gainforth HL, Upper R, et al. Couples' experiences with sexuality after spinal cord injury. Disabil Rehabil. 2023;45(4):664-72. https://doi.org/10.1080/09638288.2022.2040611

9. Barrett OEC, Ho AK, Finlay KA. Sexual function and sexual satisfaction following spinal cord injury: an interpretative phenomenological analysis of partner experiences. Disabil Rehabil. 2024;46(1):86-95. https://doi.org/10.1080/09638288.2022.2159073

10. Elmelund M, Klarskov N, Biering-Sørensen F. Prevalence of urinary incontinence in women with spinal cord injury. Spinal Cord. 2018;56(12):1124-33. https://doi.org/10.1038/s41393-018-0157-0

11. Mair L, Moses J. Adaptations to adult attachment and intimacy following spinal cord injury: a systematic review. Disabil Rehabil. 2024;46(10):1962-78. https://doi.org/10.1080/09638288.2023.2218650

12. Orlandin L, Nardi A, Costa RRO, Mazzo A. Dificuldades de pacientes e cuidadores na realização do cateterismo limpo: revisão de escopo. ESTIMA, Braz J Enterostomal Ther. 2020;18:e1520. https://doi.org/10.30886/estima.v18.907_PT

13. Blanco J, Sousa LA, Martins G, Bentlin JP, Castilho SS, Fumincelli L. Qualidade de vida e cateterismo urinário no contexto da enfermagem em reabilitação: uma revisão integrativa. Rev Eletron Enferm. 2021;23:66576. https://doi.org/10.5216/ree.v23.66576

14. Welk B, Myers JB, Kennelly M, McKibbon M, Watson J, Gervais K, et al. A qualitative assessment of the psychosocial aspects that play a role in bladder management after spinal cord injury. Spinal Cord. 2021;59(9):978-86. https://doi.org/10.1038/s41393-020-00538-9

15. Alexander M, Courtois F, Elliott S, Tepper M. Improving sexual satisfaction in persons with spinal cord injuries: collective Wisdom. Top Spinal Cord Inj Rehabil. 2017;23(1):57-70. https://doi.org/10.1310/sci2301-57

16. Zanin E, Salizzato S, Aiello EN, Leochico CFD, Rey-Matias RR, Pauletto P, et al. The contribution of biopsychosocial dimensions to sexual satisfaction in persons with spinal cord injury and their partners: an exploratory study. Spinal Cord Ser Cases. 2022;8(1):42. Disponível em: https://doi.org/10.1038/s41394-022-00507-9

17. Nevin S, Melby V. Talking about sexual functioning post-injury: the views of people with spinal cord injury-an interview qualitative study. Int J Nurs Pract. 2022;28(3):e12977. https://doi.org/10.1111/ijn.12977

18. Bryant C, Gustafsson L, Aplin T, Setchell J. Supporting sexuality after spinal cord injury: a scoping review of non-medical approaches. Disabil Rehabil. 2022;44(19):5669-82. https://doi.org/10.1080/09638288.2021.1937339

Published

2026-09-03

Issue

Section

Original article

How to Cite

1.
Impact of urinary incontinence on the sexual lives of women with traumatic spinal cord injury: a qualitative study. ESTIMA [Internet]. 2026 Sep. 3 [cited 2026 Sep. 4];24. Available from: https://www.revistaestima.com.br/estima/article/view/1936

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